Sunday, November 27, 2011

Fundraising Chocolates - please never again

Kayleigh had lots of times where she had to sell fundraising chocolates for school, In preschool we sold 3 boxes of freddo frogs to people at my work -it seemed to go OK and I didn't mind.

However - - - in year 2, Kayleigh and Natassja were given a mixed box of malteasers, starburst sankes etc to sell at $4 a box - a total of 20 boxes in all (or $80 worth). Somehow they brought them home without Terence noticing them, and Kayleigh did not tell me that they had them to sell. I didn't find out until a week later when I was cleaning their room and found 20 EMPTY boxes of malteasers/starburst under the bed, at the back of the cupboard and in their clothes. Kayleigh and Natassja managed to eat ALL the boxes. I was horrified because now we were in debt to the school for $80 with nothing to show for it.

The school was really good about it - the poor front counter staff member was in tears of laughter when we told her, and they allowed us to pay them off. I must say, from that point on it was 'Fundraising chocolates - not thinks. Please, never again!!!!'

Sunday, November 20, 2011

Things to be grateful for

Although Kayleigh has passed away, I can't help feeling a little grateful about things, even though I want her back more than anything in the world.

1. I know that she is no longer here
I am grateful that I know what happened - think about the high profile stories like Daniel Morcombe and the hundreds of families each year that have children and teenagers go missing. They don't know if their kids are alive or dead. They don't know what was happened to them. I can grieve over my lost girl, they can't. They have a sense of loss, but not knowing what has happened means they can't grieve properly or really move on - they have a hole in their lives that had huge question marks around it.

2. She wasn't in pain when she passed.
By all accounts, because Kayleigh heart failed, she would have been completely unaware that she was dying. and if she was it would have been less than 10 seconds of possible awareness - to her it was probably like going to sleep. For all the kids that have died in horrible car accidents, house fires, beaten up by others - they would have been scared, frightened and in pain - maybe for hours before they died. I am grateful in a way that Kayleigh did not suffer before she died.

3. We got to say goodbye
Those 36 hours that Kayleigh was on life support was hard, but it give give us, the other kids and the family a chance to say good bye, to be there when she breathed her last breath and to listen to her fading heart beat. So many people do not get that chance, they go to bed at night and find their beloved child gone in the morning.

4. We got to know her
So many people that I know have lost children as an infant - some a couple of days after birth, some a little later. We had Kayleigh for 13 1/2 years and am I grateful that we knew her that long. Yes I would have preferred that I was old and grey before she died, but we saw her grow and got to know her personality and watch her as she struggled to make friends and be happy with herself. So many people don't even get this opportunity.

5. She was happy
Kayleigh did not want to die. She had finally got to a place in her life where she was happy at home and at school. She had friends that cared, she felt like things were finally on track for her. There are many suicides each year by teenagers that are depressed and not coping. Suicide is a tragic horrible loss for everyone. Kayleigh had been depressed in year 6, she struggled daily to be happy, but she found what she was missing when she went to high school. I am grateful that Kayleigh wanted to live, wanted to experience life - she didn't want to die.

Tuesday, November 15, 2011

What frustrated me the most after Kayleigh passed away

When Kayleigh passed away, the first week was very difficult - won't go into it now. After that I started getting very frustrated and in fact angry at one group of people - the religious pushy people. Now don't get me wrong, I respect people with religious beliefs and have many friends that attend church regularly and none of them were an issue. They all know that I am not religious in any way (I would class myself as atheist / agnostic) but there were people on the fringes, and even people that we didn't know who would push their religion on us, at a time where it was not wanted or liked.

The first came a couple of days after Kayleigh died - before the funeral. I don't know who sent it, but I got a whole wad of pamphlets and information about God and the afterlife and how children are chosen to be angels in heaven. I took one look at it and saw red. I think that wad of paper was put in the fire that night. I was so angry that people would use my grief to push their ''message''. The weeks after saw a parade of people, some that we sort of knew through our children and some that we did not know at all, approach us. Most gave their condolences, which was appreciated, but there were the few that couldn't help themselves. We were barraged with many versions of the following:
  1. 'She's with her god now, she's in a better place'.
  2. 'God needed another angel and she was chosen'
  3. 'I've spoken to my priest and he would love to meet with you and discuss gods way'
  4. 'Although you are sad, she is with god now and she's happy, so you should be happy too'
I'm sorry to say that many times I wanted to punch these 'well meaning' people in the face. I'm sorry - 'her god???' Kayleigh wasn't religious. 'She's happy now????' Ummmmm, please explain........ and 'you're discussing me and my family personally, with your priest and I don't even know you'. I was polite and thanked them and moved on, but inside I was seething. I didn't want their religious crap (sorry, that's how I felt) and I knew that in some way that these people thought they were doing to right thing, to give us......something. But it made me stop wanting to go to places where people would know us and want to talk because I didn't want another well meaning religious discussion about how Kayleigh and god were going.

A word of advice, if someone you know experiences a tragedy like this, and you don't know if they are religious, or what religion they may follow - don't mention your religion, because you are not helping. Not at all.

Monday, November 7, 2011

I thought she would be OK. . . .

I guess in a lot of ways I am the eternal optimist - even when Kayleigh was not breathing and had no heart beat, and we were doing CPR, I thought she was going to be OK. Terence I think had already grasped that Kayleigh was not OK - he said 'we've lost her Jude, we've lost her'. And I kept on going that she was going to OK, we just had to keep going. When the ambulance arrived (finally) and worked on her and finally got signs of life, I felt relieved - I thought then she was going to be OK - I later remembered the the ambulance guy said we have some signs - they never said they got her.

When we were waiting in the hospital emergency services area in a special room when they were working on her further,and the emergency room manager came and spoke to us - he told us that she had started attempting to breathe on her own and they had to paralyse the area so that the breathing machine would breathe for her - I took this as a positive sign and though she would be OK. I remember now that when we saw her in that room before they moved her up to ICU that no-one in the room spoke to us, they all looked away - it was really quiet, all I can think is they knew that Kayleigh was not going to make it but no-one said anything to us at that stage. I still thought she was going to make it.

When they moved her upstairs to ICU one of the nurses sat down and told us Kayleigh's eyes had been fixed and dilated since she had arrived at hospital and that this was not a good sign as it showed severe brain damage had occurred and we should prepare for the worst and think about organ donation - I looked at her and thought - 'Hey this is Kayleigh!! You don't know her, how dare you tell me this - you're not even a qualified doctor!' I still thought she would be OK.

Over the next 36 hours as Kayleigh laid in the ICU hooked up to machines and drips and all sorts of things, I though she would be OK. Even though her pupils didn't move (although at one stage they looked like they did get smaller) and there was no movement except for the breathing (controlled by the machine) I still thought she would be OK.

After the cardiologist had checked her heart and said there was no structural issues with it, it came down to how long her brain was without blood supply and oxygen. I knew that Terence and I started CPR within 5 minutes of Kayleigh collapsing, so in my mind I thought she had a chance. What I didn't know is that brain damage occurs up to 48 hours after the brain is starved of blood supply/oxygen - with the first 24 hours being the most critical. Although she may have been 'OK' by the time she got to hospital, she was not 'OK' after 24 hours.

The ICU doctor told us to prepare for the worst before the CAT scan was performed. Kayleigh was not responding in any manner. I still thought she might be OK - I think by then I was in denial. Terence and I left the hospital while they performed the CAT scan. We were told of the result when we got back. We were asked about organ donation. I didn't know what to think.

When they turned the machine off and I listened to her heart slowing down, part of me still thought - hey this is Kayleigh she'll start breathing on her own now and then wake up - maybe I was stupid, maybe I was thinking Kayleigh would beat the odds, maybe I wasn't prepared to let her go.

I think I spent the next week in a state of semi-shock - I knew she was gone, I heard myself telling people how she died, the circumstances of what happened. I sounded like a robot on auto-pilot, but I wasn't believing it myself.

It was Kayleigh who had died - it wasn't right. Kayleigh was so strong and resilient. And I thought she was going to be OK.

Learning to talk

I think all parents remember the ways the their kids learn to talk and the funny mispronunciations and ridiculous things that kids call thing - Lucas used to call Lilies 'willy flowers' which cracked Kayleigh up so much that she had him repeating it again and again.

Kayleigh had two things which we remember clearly from when she learnt to talk. Her first word was, of course 'Daddy' followed by 'Mum'. It was the accent that she used on Daddy that was most noticeable, even to strangers. Kayleigh said 'Daddy' with an English accent (Terence is from England) so it came out more like 'Da-deeeeee' Which was very cute and I think Terence really like it like that. Over time, and with interaction with other people and more vocabulary, Kayleigh lost the accent on 'Daddy'.

The other word that we remember is the word 'bottle'. Kayleigh used a bottle for feeding from about 6 months to 18 months old. When she was thirsty she would asked for a bottle, but she didn't pronounce it properly, she would said 'Brrrrrrrrrr-tle'. She would have been older than 2 before she stopped saying it like that. Other people didn't understand her when she asked for a drink like that but we knew what she meant. It was so cute.

I miss her.

Sunday, November 6, 2011

Anxiety

I have held off writing about Kayleigh and her Dad, Terence, as Tel asked me not to until he was ready.

Kayleigh didn't have anxiety, she loved the world, but her Dad suffered from severe anxiety which did mean that some of the things that Kayleigh wanted to do - like go down the coast - was not possible. Anxiety is extremely limiting for sufferers and their family but Kayleigh dealt with it with smiles and love.

In year 7, her dad was particularly bad, at one stage he had difficulties even taking the kids to school. Kayleigh was happy to go with the other kids to primary school and then jump on her bike and go to school herself, even it meant being 5 minutes late. She did this because she was helping her dad. Every day she would call him at either recess or lunch to see how he was going she always said ' Dad if it gets too bad, I'll come home for you.' She told him to call her if he wanted to, even though he never did. It was the knowledge that Kayleigh was happy to be there that made it easier. Several times when her dad had massive panic attacks before school (I had already left for work) she stayed at home to make sure that he was OK. She loved this time with her dad when the other kids were at school, helping him in the garden, or clean the house, or making him a cup of tea. Terence did feel bad about Kayleigh staying home just to make sure he was OK, but looking but he doesn't regret it - those times he had with Kayleigh were special  and he is glad he had them.

Tuesday, November 1, 2011

Athletics Carnival

Calwell High just had their athletics carnival for the year - with one surprise - Natassja won the girls javelin (she is not sporty at all) although it was through default as no other persons javelin stuck in the ground. I think no-one was more surprised than Natassja herself and if Kayleigh was here she would have been laughing at the sheer silliness of it all.

Now we all knew that Kayleigh shone in sports, although her asthma did affect her performance somewhat. She always did well at the cross country and she also did well at the athletics carnival particularly the 100m, 400m, long jump and shot put. Kayleigh made the Murrumbidgee carnival for the first time in year 6 for 400m and long jump, although she did pull out of the 400m because she had an asthma attack. That year I came down during lunch time to see her run (it was at Calwell oval) and she was soooo happy to see me - and of course convince me to give her money to buy herself some lollies and a soft drink. The next year she made the Murrumbidgee (or was it the Southside Carnival?) again - this time in 100m, 800m and shot put. This time it was down at Lanyon oval - I didn't go to see her, but she did OK - didn't come a place in anything but she was really happy just to be there and see some of her friends do well. Kayleigh always came home from athletics carnivals with bunches of ribbons and the biggest smile on her face. In the primary years it was always good to see as she felt like she was achieving something. Her nanny started a book for her that she put all of her awards into and she was so proud of it, as we were of her.